Senators' Statements
World Autism Awareness Day
April 4, 2017
The Honorable Senator Leo Housakos:
Honourable senators, did you know that in 2016, one in every 68 children is diagnosed with autism spectrum disorder? One in every 68. Compare that to one in every 150 children who received a diagnosis of autism spectrum disorder in 2002. This is astonishing increase in just 14 years. This phenomenon has a profound effect on individuals, families and our nation as a whole.
My wife Demi and I were touched first-hand by this issue the day our dear friends, Mary Gouskos and Nick Katalifos, received the diagnosis of autism for their son Emmanuel.
Through them, we have seen first-hand the challenges and struggles that families dealing with autism are facing and applaud all who have stepped up to meet these challenges.
Early diagnosis and intervention are critical, yet the medical system is unable to keep up while the rates of autism continue to soar. Parents complain of the increasingly high costs of therapies while the public system has failed to provide adequate services. Schools across Canada are bursting at the seams as they try to keep pace with the rising number of students with autism.
And it's only going to get worse unless the federal government takes immediate steps to address the state of autism policy in Canada.
This simple yet startling reality was put front and centre 10 years ago by our own Standing Senate Committee on Social Affairs, Science and Technology in 2007, in its report Pay Now or Pay Later: Autism Families in Crisis. The report called for a national autism spectrum disorder strategy — even back then — at the heart of which would be a plan to broaden educational and professional training opportunities for Canadians with autism.
A good start came under former Prime Minister Stephen Harper, when the federal government allocated $11 million over four years to support training programs for autistic adults with the hope of assisting them into the workforce. Indeed, some corporations have also recognized that these individuals often possess talents and skill sets that are very valuable.
Many private organizations are attempting to fill those gaps. Take the example of Montreal's Giant Steps School and Resources Centre for Autistic Children. The school offers a comprehensive approach, including a variety of therapies and teaching methods.
But sadly, it is the only school in Quebec dedicated exclusively to autism. So, as you can imagine, there are more children on the waiting list than there are those receiving the help they desperately need and deserve.
While Giant Steps School must be commended, without sufficient support from the federal government, they and other organizations like them are facing a daunting task. The fact remains that we are not doing enough to support its efforts and other similar programs throughout our nation.
Every child is born with the same potential to achieve greatness, but each and every one of them has the ability to do it at a different speed and in different ways.
Indeed, when society learns to harness all of our children's strengths and leaves not a single one behind, only then will society truly maximize our combined potential as human beings.
Whether focusing on research and early intervention, family support services or job training, the time has come to develop a government-led, committed and coherent national policy on autism.
It has been a decade since our report was released, but senators haven't forgotten the daily struggle of these Canadians — nor will we.