Honourable senators, today I rise to speak to Motion No. 113 for a Standing Senate Committee on Social Affairs, Science and Technology, or SOCI, study on health misinformation, its impacts on Canadians and potential remedies.

In April of this year, the Food and Drug Administration’s Commissioner of Food and Drugs, Robert Califf, reported that the recent rapid drop in life expectancy in the United States of America was in great part due to increased health misinformation.

The Council of Canadian Academies’ January 2023 Fault Lines report determined that, between March and November of 2021 alone, at least 2,800 Canadian lives lost to COVID-19 could have been spared, over 10,000 hospitalizations could have been prevented and $300 million in hospital costs may have been saved if not for disinformation impacting health behaviours of Canadians. Vaccine disinformation alone is in large part responsible for these negative findings.

In a study published in the journal The Lancet on June 23, 2022, Dr. Oliver Watson and colleagues used excess death analysis to determine that vaccinations prevented 19.8 million deaths globally during the first year of COVID-19 vaccination.

In December of 2022, the C.D. Howe Institute report Damage Averted: Estimating the Effects of Covid-19 Vaccines on Hospitalizations, Mortality and Costs in Canada noted that between January 2021 and May 2022, vaccines were highly effective at reducing COVID-19 cases, hospitalizations and deaths: 21% fewer cases, 37% fewer hospitalizations and 34,900 fewer deaths. Its economic modelling reported an estimated net cost/benefit of between $0.4 billion and $2.1 billion in cost savings alone, and when the statistical value of life analysis was applied, these savings added an additional $27.6 billion.

Yet, this vaccine disinformation continues to expand, reaching countless Canadians through social media and “alternative news” channels that promote and distribute many different kinds of disinformation; belief in health disinformation is also linked to beliefs in various types of conspiracy theories. Put together, these forces contribute to what scholars such as Kathleen Higgins and Ralph Keyes have called a “post-truth era,” with its attendant social polarizations.

Recently, this chamber initiated legislation calling for improved national action on addressing the needs of people and families living with autism, a very important step forward, indeed. Autism has been a health disinformation battleground for some time now, ranging from the completely false and fully discredited assertions that routine vaccinations cause autism, to the endorsement and, I might add, highly profitable sales of so‑called alternative treatments that have no scientifically valid evidence of positive effect but that in some cases could cause great harm — so-called treatments such as craniosacral manipulation, iron chelation therapy, and daily use — by drinking, bathing or enemas — of chlorine dioxide, which is also known as Miracle Mineral Solution or Master Mineral Solution or, more commonly, bleach.

The widespread concern about health misinformation is summed up in the preamble to the Council of Canadian Academies report:

Misinformation can cause significant harm to individuals, communities, and societies. Because it’s designed to appeal to our emotions and exploit our cognitive shortcuts, everyone is susceptible to it. We are particularly vulnerable to misinformation in times of crisis when the consequences are most acute. Science and health misinformation damages our community well-being through otherwise preventable illnesses, deaths, and economic losses, and our social well-being through polarization and the erosion of public trust. These harms often fall most heavily on the most vulnerable.

A 2020 U.S. Surgeon General report titled Confronting Health Misinformation similarly noted this negative impact and called for immediate and effective action to deal with health misinformation:

Health misinformation is a serious threat to public health. It can cause confusion, sow mistrust, harm people’s health, and undermine public health efforts. Limiting the spread of health misinformation is a moral and civic imperative that will require a whole-of-society effort.

Sadly, there is little that we in Canada can point to in the way of federal-government-supported, coordinated and effective action to address health misinformation. There are some interventions under way, such as the ScienceUpFirst initiative, that — in the interest of full disclosure — I, along with Professor Timothy Caulfield, catalyzed during the first pandemic year. There are several other government-funded activities under way, through the federal Digital Citizen Initiative, the Encouraging vaccine confidence in Canada fund, the Vaccine Community Innovation Challenge and a few others.

There is a government website that provides information on disinformation and how to spot it. In an unscientific straw poll of senators and staff that I recently conducted, only 2 of 48 people even knew it existed, and only one had actually bothered to look — not very effective.

The Government of Canada also commissioned a number of reports on this topic, such as Misinformation in Canada: Research and Policy Options, from Evidence for Democracy; Science Disinformation in a Time of Pandemic, from the Public Policy Forum; and Vulnerable Connections and Fault Lines from the Council of Canadian Academies.

Yet, only the minority of Canadians are up to date in their vaccinations, and health disinformation continues to proliferate. Just two weeks ago, UNICEF Canada reported that the proportion of Canadians who believe childhood immunizations are important has decreased by 8% since the onset of the pandemic. Should this trend continue, we can expect the return of a myriad of deadly infectious diseases, including measles, polio and even smallpox. As well, health disinformation is increasingly being used to sell unregulated and possibly harmful so-called cures or treatments for COVID-19 or other diseases to people online.

The reports that I identified earlier included a number of recommendations for citizens, governments and social media platforms that they felt are necessary to effectively combat disinformation. These included dealing with social media companies in their role as enablers or purveyors of disinformation and the development and delivery of effective public education campaigns to counter the health and social harms of disinformation, all things that could be looked at further in committee study.

Colleagues, action is needed, and our work in the Senate through a SOCI study can be an important part of countering the negative impacts of the many-headed hydra of health disinformation.

As we are aware, health disinformation has always been with us, but, in recent years, it has become a substantial and growing concern with well-established negative impacts on the health of individuals and populations. It has also negatively impacted our trust in public health and in health providers, as well as our economic and civic well-being. It has integrated itself into a social framework that rejects expertise, confuses science with information and encourages verbal — and even physical — attacks on scientists and health providers alike.

Indeed, the World Health Organization, or WHO, has called this growing pernicious threat an “infodemic” that has spread deeply into every part of the globe, and for which our societies have yet to find a fulsome, effective and durable response.

The Senate of Canada is known for the solid studies that its committees conduct. I am hopeful that the Social Affairs Committee will be able to delve into the complex and challenging aspects of health disinformation as it affects Canadians, as well as identify some effective remedies that could be applied.

Today, I would like to suggest some directions that the committee could consider in its work. I will start by addressing what is meant by the terms “disinformation” and “misinformation.”

Generally, disinformation refers to false or inaccurate information that has been deliberately created to deceive. It is created by unique actors, both organizations and individuals, and spread for various purposes. These actors can be outside or inside of Canada; they can include foreign governments whose use of disinformation is designed to create internal division and civil strife in our country, as well as organizations or individuals whose purpose is mercenary or ideological, or both.

Some examples of this include the attempts of the Russian state to sow civil discord in Canada by spreading anti-vaccination messaging through various sources, as well as the self‑proclaimed health experts who spread anti-vaccination information as a vehicle for selling their so-called health products — Mercola Market is a good example of this.

Misinformation also refers to false information, but it is often applied to identify the process by which disinformation is spread — which is frequently by individuals or groups who do not take the time to critically evaluate what they are spreading, or who do so because of emotional investment in the message that they are spreading.

For the sake of brevity, I will use the word “disinformation” to include both the deliberate and inadvertent spread of false or inaccurate information intended to deceive. The outcome is similar.

Sadly, colleagues, health disinformation is also a yellow brick road into conspiracy theories and anti-civil society institutions. Robust research demonstrates that once an individual has gone down the rabbit hole of health disinformation, they are much more likely to become involved in one or more conspiracy theories. Once a person becomes involved in one conspiracy theory, they are more likely to embrace many.

Some classic health misinformation-driven health conspiracy theories pertaining to vaccines are the following: COVID-19 vaccines are a bioweapon for population elimination; COVID-19 vaccines contain microchips to be used by Bill Gates, the World Economic Forum, or WEF, and the WHO for population control; the vaccine alters a person’s DNA; the vaccine is the cause of COVID-19 variants; and vaccines cause large numbers of sudden deaths.

All of those are conspiracy theories that grow out of, use and amplify health disinformation.

The concern is that these health disinformation conspiracy theories are becoming increasingly linked to other conspiracy theories, such as the Great Reset — and that the WEF and the WHO are taking over the governance of sovereign states.

Often, these conspiracy theories spread through algorithms within social media channels and through alternative news sources, such as BitChute, Rumble, Infowars, the Gateway Pundit, the Last Line of Defense, Natural News and The Unhived Mind newsletter, just to mention a few.

Once an individual — who is caught up in health disinformation — links to those sources, other types of conspiracy theories on numerous other topics can become part of their belief system.

In Canada, EKOS Politics has created a disinformation index made up, in large part, of belief in health disinformation.

Canadians who score high on the index, meaning that they believe health disinformation — which is about 15% of Canadians — are much more likely to distrust and not follow public health advice, much more likely to dismiss the importance of Indigenous concerns and much more likely to dismiss the importance of climate change.

Furthermore, data from EKOS polling shows that Canadians who score high on this disinformation index tend to support Russia in its war against Ukraine.

This fits with the alarms sounded by many, including Marcus Kolga, of the Macdonald-Laurier Institute, who has clearly demonstrated the role of Russia in spreading health disinformation in Canada. Other scholars have noted that China has also been actively engaged in spreading health disinformation.

One other issue that has received scant media attention is the impact of belief in health disinformation and conspiracy theories on families. As some of us know from personal experience, adherence to health disinformation and conspiracy theories can pull otherwise cohesive families apart. If that can be the impact of health disinformation on families, just think of what it can do to communities or civil society.

Indeed, some scholars have already noted the relationship between health disinformation and social and civic polarization.

Colleagues, there are numerous remedies that have been proposed to help counter health disinformation, and a thorough Social Affairs Committee study should critically assess these remedies, as well as provide direction on how those that are effective can be best applied. Those remedies might require numerous concurrent interventions and will need to be well supported, established outside of government and sustainable — because we are in this for the long haul.

Colleagues, the Senate is known for its good committee work in helping Canadians journey through complex issues and difficult topics. Health disinformation and its negative impacts, as well as the potential effective remedies and how to apply them, are some of the wicked, complex issues facing Canadian society. Indeed, health disinformation might be one of the most important issues that not only Canadians, but also global citizens, have ever faced.

I look forward to further debate on this motion and to its rapid passage so that the Social Affairs Committee can get to work on this challenging opportunity.

Thank you. Wela’lioq.

If that’s the will of the Senate.

Thank you for that question. It is an important issue.

My intention is to bring the issue of health disinformation to committee study. I don’t think it would be appropriate for me to tell the committee what the limits of the study should be, or in what direction the committee should choose to study it. Committees are the masters of their own fates, and it would behoove the committee to make those decisions.

We have an incredibly excellent group of people on that committee, as all Senate committees do, and we want to ensure that those committee members and the steering committee — under the able leadership of Senator Omidvar — would make decisions regarding what the parameters of the study would be.

I want to remind the chamber that Senate committees have engaged in studies that have lasted for years, and that have made major impacts on improving Canadian society. My purpose here is to start with health disinformation — and should the committee wish to take it further, that would be the purview of the committee.

Thank you very much for that question, Senator Deacon. Certainly, I think that the expertise that needs to be at that table would depend on where the committee wants to go with the study.

The first tranche of expertise has to be in what health disinformation is. What impact has health disinformation had on the health of Canadians? What impact has it had on the economy of Canadians? What impact has it had on the way that we structure our institutions and relate to our health care providers? In other words, there was violence against health care providers because of disinformation. Are there specific communities in Canada that are more susceptible to disinformation? How can we then make sure those communities are treated equitably? That’s where I would start.

You can already see there are going to be quite a number of witnesses who have incredible expertise in these very different areas, and there will be more than I was able to mention off the top of my head.

I have been following this issue for a couple of years now, and I am really encouraged by the amount of really robust research on these topics and the amount of incredible work. There are some Canadian experts who are seen globally as having expertise in the health disinformation era. There are also some outstanding experts in the United States, in the U.K. and at the World Health Organization itself. I would hope that the committee will see fit to call on the expertise of these other people who can help us understand not just in the Canadian context but in a wider global context what that impact might also be.